THE 3RD ANNUAL ULTIMATE CANCER SHUT OUT BLOOD DRIVE!!!! (can you believe we are entering our 3rd year!)
We continue to support Memorial Blood Centers and all the kids in need of life saving blood!
Please join us in continuing our goal to raise awareness and collect blood donations to SAVE LIVES!!!
QUESTIONS? CANCERSHUTOUT@COMCAST.NET OR 763.607.6224
Saturday, September 19th, 2015
Fogerty Ice Arena
9250 Lincoln St NE
Blaine, MN 55434
10:00 am – 4:00 pm
Sign up here: https://allstarclub.mbc.org/mbc/mobilesch/search.php?searchtype=code&act=search&code=4151 OR email me the time you would like with your cell phone and date of birth. J
28 bags of blood is why she is still here... Grateful.
Here is the video that was presented at the Memorial Blood Center Gala…
KARE 11 appearance
GIVE BLOOD OFTEN - SAVE LIVES ALWAYS
836 days later...... Well, I just spent some time updating Jaela's treatment tracker. The totals are a reminder of what was a journey to ALWAYS remember. It is quite astonishing what the human body can tolerate and the power it has to heal. Jaela's unquantifiable attitude and choice to not let this stop her life, is one that many can learn from. The power of the mind and the drive of an attitude can change your life.
While clinic appts will continue every other month fo...r about a year, and her last prescription goes through 2nd week of December, this is a point in time to pause and reflect on where we have been, what has transpired and the people like you that made our world "doable" these last 836 days. WOW 836 days.....
Here are the totals as of 9/11/15 ----LAST DAY OF CHEMO TREATMENT PLAN----
•826 doses of Chemo, oral, IT (via spinal tap) and IV
•3 IgG infusions to reboot the Immune System
•99 Clinic Appts
•34 Days/Nights in hospital, another 4 partial stays
•5 Emergency Room Visits - 1 by Ambulance
•Lost all of her hair, grew some back lost itall again, and growing more now
•13 Anti biotic or PCA infusions
•2 surgery’s for her port placement and for port removal
•48 spinal taps
•257 shots or needle injections (blood thinners and Chemo Erwinia)
•21 x-rays/MRI's/CT scans
•28 AMAZING bags of blood or blood products
•26 PT sessions, 4 music therapies
•9 attendances for benefit events
•6 special interviews/videos to share her story
•6 Research studies can case studies where she has taken surveys and given her own blood, spinal fluid and bone marrow for the continued fight for a cure
•45 days of missed school with 36 other partially missed days for treatment or illness
I have also updated her OVERVIEW tab on this site to see the daily / monthly summaries...
Thank you again for the AMAZING support and all the prayers and well wishes!
onward people make life what you want.....
We were sitting quietly in the examination room at Anoka Riverway.... it had been more than 30 minutes since they decided to draw Jaela's Blood. We sat wondering why they were taking sooo dang long. I had more than 1 inclination that the delay equated an issue. In my mind I told myself, [they are going to come in here and tell us we need to see an Oncologist], someone was preparing me for what we were then told.
Her counts were sooo high the clinic level machines could not provide accurate results, that they had been on the phone with the Hematology and Oncology experts at Children's and we needed to go, right then, to get the help we were going to need. They recommended an Ambulance, but we didn't need to be that extreme, right?? They asked us to go immediately and expect to stay a few days.
Against their wishes, I did take her home. I let her take her time gathering what she thought would give her comfort and peace for the undefined next steps. I frantically was updating my mom, her dad and my boss. Unplanned -uncontrolled was not my style. (well it really isn't still, but I have learned to let go of sooo much)
This is where it all began. The last 12 months of life defined by a treatment plan, expected and the unexpected response to that treatment plan and an AMAZING amount of support and prayer.
As we follow so many of our new Cancer Families, those that have won, those that are fighting with us and those that have lost their fight, we pause and recognize the unquantifiable gratefulness that Jaela is doing unbelievably well, is being allowed to do what she loves, is growing curly strawberry blonde locks, has 6 A's and two B's in school (B+'s, lets be clear) and that the nightmare we had last summer has become just memories.
The carwash, the Beef's beer bust, the ice cream social and grill out, the Blood drive and bake sale, TBox dinner, the MAXX night out, the jewelry party, Drop the Puck on Cancer and ending the year with the legendary Golf & Silent Auction Benefit. How lucky are we? People are what make everyday doable. Thank you.
The sky is blue, the breeze is light, the day is full of moments. Pause and enjoy a few.
Yea, thats Zach.... He is HOT
CAN YOU SAY TWINS?
OUR FRIEND JONATHAN QUICK
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Jaela's Ultimate Cancer Shutout
“If you laugh, you think, and you cry, that’s a full day. That’s a heck of a day. You do that seven days a week, you’re going to have something special.”
- Jimmy Valvano
"You were born to be a player. You were meant to be here.
This moment is yours" -Herb Brooks