Journal entry by Katie Meister — 10 hours ago
To all those that have participated in our first 3 Blood Drives, THANK YOU!!! If you have not been able to join us in raising life saving blood donations, join us this year!
Saturday, September 17th - 10:30 am - 4:00 pm
Fogerty Ice Arena
9250 Lincoln Street NE
Blaine, MN 55434
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Jaela is having a GREAT summer! LOTS of hockey, cabin life and just started her Tennis season today. On August 22nd she will start her first year of COLLEGE as a PSEO student for her Junior year! So exciting and what a great opportunity to earn her 2yr Associates in Science degree as part of her High School education! Couldn't be prouder. :-)
Head in for our 11 month check up tomorrow, just one more month and her final IV chemo and surgery will be 1 year ago!!! Her last treatment medication was December 11th, just 8 months ago this week.
WOW. Time flies.
I found this link to a video we assembled for the golf tourney. What amazing memories, fantastic people and powerful support. The color orange gave us the momentum and glow to lead us to win this fight!!!
Thank you to all, for the past, the present and for whatever the future holds!
PS - Prayers, positive thoughts and hugs to precious little Kennan as he begins his healing in Duluth at a wonderful residential treatment facility. We miss him like crazy, but are relieved he is getting the long over due help he has needed for so very long. XOXOXOXO to my sweet boy. Hope to see you soon !
28 bags of blood is why she is still here... Grateful.
Here is the video that was presented at the Memorial Blood Center Gala…
KARE 11 appearance
GIVE BLOOD OFTEN - SAVE LIVES ALWAYS
Time ...... so many moments you wish you had more time, then so many moments you wish the time would hurry up and end. There are too many moments I wonder where the balance is and what should I be doing differently???? May 29th 2013... that is a FOREVER moment that will be reflected upon often.
As the memories of the cancer journey dissipate, the small reminders come and go. Stories you hear of those that are new to the battle, and stories of the old. Stories that you love to hear, then the stories you know are real. When you look at the big picture, all that is there, what do any of us really have to complain about???
December 11th, 2015 was the last date Jaela took any meds affiliated to her cancer treatment. September 11th, 2015 was the last date of her Chemo therapy. Both are less than a year ago, but to us, they seem LONG LONG ago... Jaela now takes daily meds for her Thyroid and her newly profound allergies. (She is very allergic to Dairy again, as she was as a infant and toddler) Pretty simply in the grand scheme of things, though right? She feels dang good most days and is in the process of researching a recent diagnosis of Bone Infarct in her knees.
2016 has been a good year for Jaela thus far. Tracking to a 3.95 for her 10th Grade GPA, inducted into the National Honor Society all while playing a mean season of hockey that lead her to qualifying for the High Performance TOP 54 festival this past April. And lets not forget her superior independence as a MN Driver. She is applying for jobs, sending letters to colleges and knows exactly what she wants to do. If only my life was so together and organized!!!!!
SAVE THE DATE for our annual blood drive!!! Saturday, September 17th !!! I will send out formal communication and sign up process once it is available. Each year has been a tremendous success and is one of the simplest ways to give back and support all those that have helped us along the way.
In closing, a few special prayers for our good friend Chrissy and her family (Jenny and JoAnn Nikovics) as her dad just passed after a much too long, grueling battle with cancer... (of course it was cancer) ugh, DAMN THAT CANCER. Love to each of you as life adjusts and moments are treasured.
Lastly and selfishly, prayers for my sweet boy Kennan... he is so lost and needs so much help. Help that has yet to be found. Mental health can be such torture to so many, especially those that are trapped by it in their own minds. This is something that is not nearly enough discussed in this society and sadly seems to only get attention when it has past the point of tragedy. Prayers to any and all that have mental illness in your lives, and hope you have found the right help!
836 days of chemo treatment to kick CANCERS ASS.... We continue updating Jaela's treatment tracker. The totals are a reminder of what was a journey to ALWAYS remember. It is quite astonishing what the human body can tolerate and the power it has to heal. Jaela's unquantifiable attitude and choice to not let this stop her life, is one that many can learn from. The power of the mind and the drive of an attitude can change your life.
While clinic appts will continue every other month fo...r about a year, and her last prescription goes through 2nd week of December, this is a point in time to pause and reflect on where we have been, what has transpired and the people like you that made our world "doable" these last 836 days. WOW 836 days.....
Here are the totals as of 11/17/15 ----LAST DAY OF CHEMO was 9/11/15 ----
•826 doses of Chemo, oral, IT (via spinal tap) and IV
•3 IgG infusions to reboot the Immune System
•103 Clinic Appts
•34 Days/Nights in hospital, another 4 partial stays
•5 Emergency Room Visits - 1 by Ambulance
•Lost all of her hair, grew some back lost itall again, and growing more now
•13 Anti biotic or PCA infusions
•2 surgery’s for her port placement and for port removal
•48 spinal taps
•257 shots or needle injections (blood thinners and Chemo Erwinia)
•21 x-rays/MRI's/CT scans
•28 AMAZING bags of blood or blood products
•26 PT sessions, 4 music therapies
•9 attendances for benefit events
•6 special interviews/videos to share her story
•6 Research studies can case studies where she has taken surveys and given her own blood, spinal fluid and bone marrow for the continued fight for a cure
•45 days of missed school with 36 other partially missed days for treatment or illness
I have also updated her OVERVIEW tab on this site to see the daily / monthly summaries...
Thank you again for the AMAZING support and all the prayers and well wishes!
onward people make life what you want.....
We were sitting quietly in the examination room at Anoka Riverway.... it had been more than 30 minutes since they decided to draw Jaela's Blood. We sat wondering why they were taking sooo dang long. I had more than 1 inclination that the delay equated an issue. In my mind I told myself, [they are going to come in here and tell us we need to see an Oncologist], someone was preparing me for what we were then told.
Her counts were sooo high the clinic level machines could not provide accurate results, that they had been on the phone with the Hematology and Oncology experts at Children's and we needed to go, right then, to get the help we were going to need. They recommended an Ambulance, but we didn't need to be that extreme, right?? They asked us to go immediately and expect to stay a few days.
Against their wishes, I did take her home. I let her take her time gathering what she thought would give her comfort and peace for the undefined next steps. I frantically was updating my mom, her dad and my boss. Unplanned -uncontrolled was not my style. (well it really isn't still, but I have learned to let go of sooo much)
This is where it all began. The last 12 months of life defined by a treatment plan, expected and the unexpected response to that treatment plan and an AMAZING amount of support and prayer.
As we follow so many of our new Cancer Families, those that have won, those that are fighting with us and those that have lost their fight, we pause and recognize the unquantifiable gratefulness that Jaela is doing unbelievably well, is being allowed to do what she loves, is growing curly strawberry blonde locks, has 6 A's and two B's in school (B+'s, lets be clear) and that the nightmare we had last summer has become just memories.
The carwash, the Beef's beer bust, the ice cream social and grill out, the Blood drive and bake sale, TBox dinner, the MAXX night out, the jewelry party, Drop the Puck on Cancer and ending the year with the legendary Golf & Silent Auction Benefit. How lucky are we? People are what make everyday doable. Thank you.
The sky is blue, the breeze is light, the day is full of moments. Pause and enjoy a few.
Yea, thats Zach.... He is HOT
CAN YOU SAY TWINS?
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Jaela's Ultimate Cancer Shutout
“If you laugh, you think, and you cry, that’s a full day. That’s a heck of a day. You do that seven days a week, you’re going to have something special.”
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